Excuse the melodrama but right now my husband and I feel like we’re about to embark on a dark, god-less, soul-crushing journey. Our son Jonah (whom I’ve written about before) just turned 21 and will age out of the school system this year. Parents of children with disabilities call this milestone “falling off a cliff.”
The cliff in question is the cessation of Jonah’s rights, inscribed in federal law, for services that nurture his development, education, and relative independence. For eighteen years he’s been cradled within the sheltering arms of laws and regulations that protect children with disabilities: the right to a free education within the least restrictive environment, the right to therapies that foster his ability to learn, and the right to “transition” services, like the job-training program he attends right now.