For most of us, our voices emanate from our own vocal chords. For Kevin, our 20-year-old son with Mowat Wilson Syndrome – a developmental disability – his words are battery-charged, delivered by an app and wrapped protectively in royal blue silicone. And we love his voice.
By the age of two, we knew that Kevin had severe language issues. We held onto the hope that, by age 10 – an important milestone in speech development – he would have words with which to communicate. Perhaps it was naïve on our part; it didn’t happen. When he was 13, we accepted what limited progress he had made, stopped thinking about what he could not do and focused on the everyday things he could achieve.