Life Beyond Autism

Janet Grillo:

It's been 81 years since Virginia Wolff published her famous essay, more than 20 since I read it, and even more before I followed her advice that "a woman must have a room of her own, if she is to write."

When my mother was my age, she considered the best part of her life as behind her. When my grandmother was this age, considered herself "old." And my great-grandmother most certainly was. But that was then, and this is the era of longevity, vitality and change. We've rewritten all the rules. But maybe rules are only scaffolds we construct to contain what we can't control. Which is just about everything.

My dreams and expectations changed radically when my child was diagnosed with Autism. From that moment, and for the next decade, every thought in my head, urge in my heart and pulse in my body was redirected to helping him. When your child is diagnosed as on the Spectrum, you're told that much can improve, but most profoundly before the age of 5. My son was already three. So the clock was ticking, the meter was running, and I had a choice to make; pursue my needs, or save his life. So I put away the screenplay I was writing, abandoned the film collective I was trying to form, and forgot any notion of going back to a traditional job. In their place, I organized a line of behavioral therapists, occupational therapists, auditory training technologies, and casein-free diets. And thanked God each day that I had the resources so I could.

Posted by Jim Zellmer at March 13, 2011 2:51 AM
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