In the shadows: Left behind by the mainland’s economic ‘miracle’, life for many disabled people is a desperate struggle for survival

Paul Mooney:

Zhang Yonghong sits on the floor of a busy Beijing subway, a few thin cushions his only protection from the cold ground. Surrounded by hundreds of paper cuttings, he leans forward with a knife, his face creased with concentration. He carefully carves folk images out of a piece of bright red paper. Zhang is 38 years old but no taller than a toddler, the result of a condition the Chinese call the glass doll disease, so-named because sufferers have bones that break easily and they are generally shorter than normal. Unable to walk and confined to a wheelchair, Zhang struggles to make a living selling his artwork, spending his days on the streets of Beijing battling hot, humid summers and bitingly cold winters, and the ever-vigilant Urban Management Corps, a unit whose job it is to keep people such as Zhang out of sight.
On this bitterly cold day, Zhang is wearing a pair of children’s padded pyjamas and several layers of jumpers. His Sponge Bob backpack sits at his side. People stop to glance at the handicapped man’s artwork, some buying a few pieces, others dropping small bills into a red donation box. Many stare at a large plastic sheet on the floor which tells the story of the Shaanxi province native and includes a picture of his four-year-old daughter, Tianyu, who suffers from the same disease. Also on display are Zhang’s recent divorce papers – his wife ran off with another man. In the photo, the little girl lies on a bed crying, casts on one of her arms and a leg. A headline proclaims: “I use my skills to save my daughter.”